A Lifetime of Love, Learnings, and Resilience
The real life journey of Sitara Ranganathan, her mother, father, siblings and the communities built around her.
November 22, 1987 to June 6, 2026
Read her obituaryMadhu Ranganathan, from the book
A Lifetime of Love, Learnings, and Resilience
Sitara was born with congenital toxoplasmosis, a debilitating infection that caused brain calcification and left her with blindness, hydrocephalus (brain ventricle enlargement), continuous near end of life illnesses and several cognitive delays. Sitara was a fighter and incredibly supported by her family, the medical experts and all communities around her during 38 remarkable years, all of which is chronicled in “The Child Who Never Knew.”
Sitara Ranganathan was given a prognosis at birth that her parents refused to accept as the whole story. Born with toxoplasmosis, a condition affecting her neurological development, Sitara grew up in a world that did not always know how to hold her. Her mother, Madhu, built a life integrating Sitara into every aspect of this world.
This memoir does not sentimentalize that life. It traces, in full, what it looked like to parent Sitara through childhood, adolescence, and into adulthood. Through hospital visits, school meetings, community systems that sometimes helped and sometimes failed, through decades of ordinary days that were never quite ordinary.
And running alongside all of it: a career that took Madhu into the highest rooms of the technology industry, as CFO & President of a global software company. The book does not ask whether these two lives were compatible. It shows, chapter by chapter, what it took to live both of them, and what they gave each other.
Families of children with special needs
A mirror, a companion, and a testament for every family navigating a world not always built for their child.
Leaders who have wondered what they are missing
A reckoning with what an integrated life with special needs means, from a mother and family that refused to shortchange.
Anyone holding two important things at once
Who refused to let go of either. Who knows that grief and gratitude frequently arrive in the same breath.
Amazon reader review
Love without condition
A portrait of love that asked for nothing back, and what thirty-eight years of that love taught about everything else.
A life integrated
Not balanced. Not managed. Fully inhabited on both sides simultaneously, for three decades, without apology.
The special needs community
Written in honor of every family navigating systems and a world not built for their child.
Resilience without performance
Not about surviving. About living, all of it: grief and gratitude arriving in the same breath.
The Child Who Never Knew invites the kind of conversations that deeply resonate with families, special needs or not: about the lives we build alongside our careers, about the people we love whose needs exceed what systems are designed to provide, about what success looks like when measured in immeasurable quantities of challenges.
Madhu is available for outreach, to meet with families, mothers, fathers, siblings and members of the community.
The team who helped bring The Child Who Never Knew from Madhu's memories to the printed page.
CEO, The Infinite Foundation · Founder, JD Exclusives
As the CEO of The Infinite Foundation and founder of the publishing house JD Exclusives—created in loving memory of his mother, Mrs. Josephine D’Souza—Iden D’Souza merges visionary leadership with compelling storytelling. He is an accomplished ghostwriter behind standout titles like Me No Pause, My Golden Stutter, Guava & I, and Madhu Ranganathan’s memoir, The Child Who Never Knew. Over the past three decades, Iden has built a formidable reputation in brand development, steering initiatives at Chaitra Leo Burnett, NIIT, Jasubhai Digital Media, and The Hindu Group. Today, he engineers big-ticket events and experiential marketing campaigns that elevate global brands. A master strategist who draws on his background in competitive chess and sports, Iden applies the same relentless focus to his business ventures as he does to his passion for culinary arts.
COO, The Infinite Foundation · Head, Sudarshan Arts
As Chief Operating Officer of The Infinite Foundation, Anand Bagwe is the master architect who transforms ambitious brand visions into flawless, large-scale realities. With over 30 years of expertise in high-end production and complex event management, his operational rigor ensures that everything from premium brand activations to stadium-level executions is delivered to perfection. Anand also heads Sudarshan Arts, his family’s 100-year-old printing business, which was instrumental in producing the book The Child Who Never Knew. Beyond the production floor, he is a dedicated writer of real-life stories and an avid foodie, bringing his signature appreciation for excellence to all his pursuits.
A diagnosis arrives for one person and reorganizes everyone. This is the story of the six people it reorganized.
Madhu was told her daughter would not live long. She treated that sentence as a piece of data rather than a verdict, and then spent three decades building the world that would prove it incomplete.
The role is mostly unglamorous. It is the appointments and the paperwork, the school meetings where you arrive knowing the regulations better than the people across the table, the long apprenticeship in systems that were designed for an average child and administered to yours. It is learning to translate between a daughter who communicates on her own terms and institutions that require her to communicate on theirs.
What the book insists on is that she did this without vacating the rest of her life. The same years contain a career that ran from public accounting to Chief Financial Officer to President of a company with five billion dollars in revenue. She did not choose between the two lives, and she does not pretend the refusal was free. It is the mother's role, in this telling, to hold the whole thing at once and to keep believing the child at the center of it is a person, not a case.
Madhu and Ranga have been married for more than forty years. A career like hers is usually explained by ambition. It is more honestly explained by a marriage in which two people kept deciding, week after week, who would be where.
The father's role in a family like this was rarely the one that got described, because it looked like infrastructure rather than sacrifice. It was the arithmetic of coverage: who was home at night, who took her to the hospital, who sat with Sitara while the other one was on a plane. It was the willingness to be the steady half of a household during the stretches when steadiness was the scarcest thing in it.
It is also the part of parenting that has no audience. Fathers of children with special needs are often expected to provide and otherwise stand slightly to the side. The book declines that arrangement. A partnership that lasted forty years through this is not background to the story. It is the condition that made the story possible.
Sitara had three siblings. Adarsh and Kailash, her brothers, grew up in a house where attention was never divided evenly and love never had to be. Pooja, Adarsh’s wife, became Sitara’s sister from the very first moment the two young girls met.
Siblings are the least discussed members of a special needs family and often the most formed by it. They learn early that fairness and equality are different things. They became interpreters for their sister in playgrounds and classrooms before anyone asked them to. They carried a private version of the same grief their parents carried, usually without the language for it, and a fierceness about their sister that outsiders underestimated.
They also carried the longest horizon. For most of their lives, that meant being the ones who would know her best and longest, the quiet promise every sibling in a family like theirs eventually makes. That is not a burden the book resolves. It is one it names honestly, alongside what all three gained: a family that taught them exactly what a person is worth.
Sitara Ranganathan was born with congenital toxoplasmosis and lived thirty-eight remarkable years. This is her story, and the story of the condition she carried.
Sitara is a Sanskrit word for star. For a few months after she was born, that was simply who she was: a beautiful baby who had already filled her parents' home with joy. Then, on a pediatric visit in Boston, an intern asked a question that changed everything: did they know their daughter was blind. Two months of appointments in California had missed it. What followed was a diagnosis of congenital toxoplasmosis, and years of hospital visits, surgeries, and uncertainty folded into ordinary life.
But ask her parents about their daughter today, and they rarely start with the hospitals. They start with the girl who played piano whenever family or friends visited. The oldest sibling who kept everyone else's routines on track. The daughter with a wit quick enough to catch people off guard. The woman who found joy in helping: unloading the dishwasher, sorting strawberries in the kitchen, or simply being included in whatever was happening around her.
Sitara, as a toddler
One of Sitara's deepest bonds was with her grandmother, Ambujam, known as Patti to the family. When doctors believed Sitara might never eat by mouth, Patti didn't accept it. She worked with her granddaughter, patiently and without hurry, until eventually Sitara learned to eat on her own. Madhu has said her daughter's story would be incomplete without Patti, whose love asked for nothing in return.
Sitara carried that same devotion into her own family. As the oldest, her brothers called her Akka, and she never hesitated to let them know when they'd stepped out of line. They adored her just as fiercely in return: as a boy, Adarsh once made it plain to his friends that mocking his sister was not something he'd tolerate. Years later, her younger brother Kailash wrote his own chapter for their mother's book, making the case that a sister who lived with such tenacity deserved nothing less than her family's full support in return.
At five years old, at a family wedding, the groom tripped and his glasses went flying. Every adult around her rushed to check if they had broken. Sitara asked only one thing.
She had a mischievous sense of humor, too: asked what date it was, she might just as easily answer with what date it had been yesterday. She loved dressing up, for Halloween and for Indian festivals alike. And in 2007, when she received her diploma from the special education program at Saratoga High School, her entire school community stood and cheered, a standing ovation her family still talks about.
As Sitara entered adulthood, her parents faced another chapter they hadn't expected: finding a home where she'd be supported long after they no longer could. Madhu has said the hardest part was never the search itself; it was arriving at the understanding that placing an adult child in a home is a required step in caring for her, not a failure of it. She and Ranga eventually found an LSA home on Cambrian Street in San Jose, less than ten miles from the house where Sitara grew up. The program director told them LSA wanted to build relationships with families, not just serve clients, exactly the fit they'd been looking for.
That feeling only deepened over time. During the COVID-19 pandemic, when Sitara contracted the virus and needed round-the-clock care, LSA's staff stayed by her side. Madhu has said that was the moment she knew, without doubt, that this was Sitara's home. When Madhu later asked her daughter what she wanted included in the story of her own life, Sitara didn't reach for the hospital visits or the hardest years. She asked her mother to write about Cambrian first, her home away from home.
Celebrating at home
Asked about her years of medical challenges, Sitara's answer was simpler than anyone expected: that she went to the hospital. Nothing more. If she had carried every hard year the way others might, Madhu has said, there would have been a lifetime of pain to hold onto. Instead, she carried almost none of it. She lived, as her mother describes it, entirely in the present.
What she carried was something else. Every day, without fail, she checked in on the people she loved: how a run went, whether a headache had eased, whether everyone had slept well. Madhu calls it a rare gift, the simple act of being asked after, and says it carried her through decades of long days. She calls her daughter her best friend forever.
That same instinct to show up for others shaped how she spent her days. In her later years, Sitara broke from her routine to advocate in person, at Cupertino City Hall, for more housing for adults with disabilities in Silicon Valley, her own cause, chosen on her own terms.
Toxoplasmosis is caused by Toxoplasma gondii, a common parasite. Most people who carry it never notice, but when a pregnant woman is infected, it can cross the placenta and affect her baby's developing eyes and nervous system. This is what doctors call congenital toxoplasmosis.
Its effects vary widely from child to child. They can include vision loss, hearing loss, seizures, and developmental delays, some visible at birth, others emerging gradually. For Sitara, the vision loss wasn't caught in early appointments; it was identified months later, during a pediatric visit in Boston.
Severity has no single trajectory. With early diagnosis, ongoing care, and the right support, children born with congenital toxoplasmosis go on to live full, particular lives, as Sitara's own story showed.
This page offers general background, not medical guidance. Every case of congenital toxoplasmosis is different.
Madhu continues to support Access Braille, a cause she shared with Sitara: a nonprofit working to make education accessible to blind and visually impaired students, particularly in India, where a shortage of Braille schools, kits, and accessible textbooks leaves millions of children with no path to literacy. Led by CEO Sudha Rajagopalan, the organization runs Braille literacy and digital empowerment programs, and reports having reached more than 25,000 visually impaired individuals to date.
Sitara's home, her father's work on LSA's board, and the annual LSA Run Home all have their own page.
Visit the LSA pageLife Services Alternatives became part of this family's life, and this is how to support the work it does.
Life Services Alternatives (LSA) is a Silicon Valley nonprofit that provides homes and day programs for adults with intellectual and developmental disabilities. Founded in 2002, it runs sixteen licensed residential care homes in ordinary neighborhoods across San Jose, Santa Clara, Campbell, and Morgan Hill, so the people who live in them are part of a community rather than set apart from one.
LSA's guiding value is People First: every resident is treated with dignity, given real choices, and included in the life of the community around them.
Life Services Alternatives
2002
Year LSA was founded
16
Licensed homes in Santa Clara County
80+
Adults with I/DD served
1:3
Staff-to-participant ratio in the community day program
Homes in the neighborhood
Licensed residential care homes with a warm, family-like feel. Residents cook, make music and art, stay active, and take part in the life of their street, supported by specialists such as dietitians and recreational therapists.
Days with purpose
An in-home day program builds recreation, exercise, and learning around each person's own goals. A community-based program adds small-group classes like cooking and safety, and volunteer placements at places such as Martha's Kitchen, the Agnews Museum, and the Humane Society.
A plan built around each person
Every resident has a person-centered plan: what matters to them, and the steps to get there, from new skills to greater independence.
For adults with intellectual and developmental disabilities, and for the families who love them, one of the hardest questions is who will care for them in the years ahead. LSA answers it with a real home, staff who are trained and stay, and a community that knows each person by name.
Adults who are clients of San Andreas Regional Center, or another California regional center, can be referred to LSA. Families can contact LSA directly to learn about openings.
Sitara moved into an LSA home on Cambrian Street in San Jose in 2015, less than ten miles from the house where she grew up. Her parents had been looking for more than a placement. When the program director told them LSA wanted to build relationships with families, not just serve clients, they knew they had found it.
That trust was tested during the COVID-19 pandemic. When Sitara contracted the virus and needed round-the-clock care, LSA's staff stayed by her side. Asked later what she wanted included in the story of her life, Sitara asked her mother to write about Cambrian first, her home away from home.
Her father, Ranga, now serves on LSA's Board of Directors and founded the Run Home, held each year in her honor.
A Life That Inspired Love, Advocacy, and Resilience
LSA's own tribute to Sitara: her childhood, the grandmother who taught her to eat, the home she found on Cambrian Street, and the advocacy she carried to Cupertino City Hall.
Read the articleRanga founded LSA's Run Home, an annual 5K and 10K that raises support for LSA's homes and programs. Runners, walkers, stroller pushers, and wheelchair athletes of all ages and abilities take part, and a free community resource fair connects families with disability service providers across Santa Clara County.
The 7th annual Run Home, in 2026, honored Sitara's life and legacy.
2026 Run Home
Held Sat Sept 12 to Sun Sept 13
Vasona Lake County Park, Los Gatos, CA
Thank you to everyone who ran, walked, and gave. Next year's date will be posted here.
Throughout the year LSA also hosts Art of Inclusion, Home is Where the Heart Is, Affordable Housing Month, and the Mountain Climbers podcast series.
See LSA's eventsFrom its launch in Chennai to readers in Hyderabad, Bangalore, and Mumbai, The Child Who Never Knew has been shared in rooms full of families, friends, and communities.
Book launch · December 2024
Book event
Book event
Book event
The Book Reporter · Founder, The Madras Reading Company
Upasana Mahtani is also known as The Book Reporter. She has been reviewing books online for the past 15 years and has always been a voracious reader; her one singular passion in life has always been books. Inspired by her favourite English teacher, she started The Book Reporter—simply to report about the books she read, much like summer vacation book reports.
She has hosted book events and author talks across India, in Gurgaon, Bangalore, Mumbai and, most recently, Chennai under the name The Madras Reading Company. She founded TMRC to bring more authors to her hometown of Chennai and to conduct literary events in the city.
Madhu Ranganathan is a Chartered Accountant from India and an MBA from the University of Massachusetts Amherst. She has spent more than thirty years in financial leadership, twice as a public company CFO and four times as a public company board director.
She retired in 2025 as President and CFO of OpenText Corporation, where revenue grew from $2.3 billion to over $5 billion during her tenure. She has been married to Ranga for more than forty years. She is the mother of three children: Sitara, Adarsh, and Kailash.
In 2025, she received the CA Geetha Ramakrishnan Memorial Award, honored by the Indian Consulate of San Francisco and the AIA for leadership and professional excellence.
ICAI San Francisco, 2025
ICAI San Francisco, 2025
TriNet Group (NYSE: TNET)
Board Member, 2025 to present
BMO Financial Group (TSX: BMO)
Audit and Conduct Review Committee, 2021 to present
Akamai Technologies (NASDAQ: AKAM)
Audit Committee Chair, 2019 to present
ServiceSource International (NASDAQ: SREV)
Audit Committee Chair, 2017 to 2019
Advisor / Investor
Native AI & agentic solutions for the Office of the CFO and business operations
Kore.ai
Consark.ai
Precanto.ai
Proscaler.ai
Devrev.ai
Perkins School for the Blind
International Steering Committee, 2025 to present
Neythri.org
Member and Panel Speaker, 2025 to present
Pacific Autism Center for Education
Board President, 2010 to 2014
Watermark
Board Member, 2016 to 2018
Three decades in financial leadership across public companies and venture backed technology firms, from public accounting through two CFO roles to the presidency of a multi billion dollar public company.
View her full career history on LinkedInMadhu speaks on public company governance, the evolving role of the CFO, women in finance and leadership, AI applied to P&L performance, and work and life integration. She has spoken at the Gita Convention and the Politico Women Rule Summit.
Book Madhu to speak
Saratoga, California
ranganathan.madhu@gmail.com
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